|
Sign In to gain access to subscriptions and/or personal tools.
|
Partners in DiabetesAction research in a primary care setting
Tai J. Mendenhall
University of Minnesota, USA, mend0009{at}umn.edu
William J. Doherty
University of Minnesota, USA
Diabetes is a growing problem that threatens both individual health and health care systems throughout the industrialized world. This study analyzes the process and evolution of a collaborative project dealing with diabetes and employing action research methodology and the Citizen Health Care model. Partners in Diabetes (PID) was created through a democratic process among patients, families and providers in a primary care setting in the United States. Fourteen PID `support partners' were nominated by their physicians to receive training and then reach out to other patients and families across a variety of contexts (e.g. home, clinic, telephone). We conducted qualitative analyses of detailed meeting process-notes spanning more than three years, and key-informant interviews with providers, patients and family members. We identified key developmental themes, including how providers and patients learned to overcome traditional hierarchy, how PID was designed and implemented, what challenges were encountered and what mistakes were made. Lessons for extending similar projects are highlighted.
Key Words: chronic illness Citizen Health Care community-based participatory research diabetes Partners in Diabetes
References
- Agency for Healthcare Research and Quality. ( 2004). Community-based participatory research: Assessing the evidence. Rockville, MD: AHRC.
- American Diabetes Association. (2005). Diabetes statistics. Retrieved 8 August 2005 from: http://www.diabetes.org/diabetes-statistics.jsp.
- Bradbury, H., & Reason, P. (2003). Action research: An opportunity for revitalizing research purpose and practices. Qualitative Social Work, 2, 155—175.[Abstract]
- Brandt, P., & Magyary, D. (1993). The impact of a diabetes education program on children and mothers. Journal of Pediatric Nursing, 8, 31—40.[Medline]
[Order article via Infotrieve]
- Brown, S.A. (1992). Meta-analysis of diabetes patient education research: Variations in intervention effects across studies. Research in Nursing & Health, 15, 409—419.
- Bruce, T., & McKane, S. (Eds.) (2000). Community-based public health: A partnership model. Washington, DC: American Public Health Association.
- Caballero, B. (1999). Obesity prevention in American Indian school children: Pathways. American Journal of Clinical Nutrition, 69, 745S—824S.[Free Full Text]
- Centers for Disease Control and Prevention. ( 2000). Diabetes surveillance report. Retrieved 8 August 2005 from: http://www.cdc.gov/diabetes/statistics/surv199/chap2/contents.htm.
- Chavez, V., Duran, B., Baker, Q., Avila, M., & Wallerstein, N. (2003). The dance of race and privilege in community-based participatory research. In M. Minkler & N. Wallerstein (Eds.), Community-based participatory research for health (pp. 81—98). San Francisco, CA: Jossey-Bass.
- Crabtree, B., & Miller, W. (1999). Doing qualitative research. Thousand Oaks, CA: Sage.
- Creswell, J. (2003). Research design: Qualitative & quantitative approaches (2nd ed.). Thousand Oaks, CA: Sage.
- Chiu, L.F. (2003). Transformational potential of focus group practice in participatory action research. Action Research, 1, 165—183.[Abstract/Free Full Text]
- Chiu, L.F. (in press). Health promotion and participatory action research: The significance of participatory praxis in developing participatory health intervention. In P. Reason & H. Bradbury (Eds.), The handbook of action research (2nd ed.). London: Sage.
- Delamater, A., Jacobson, A., Anderson, B., Cox, D., Fisher, L., Lustman, P., Rubin, R., & Wysocki, T. (2001). Psychosocial therapies in diabetes. Diabetes Care, 24, 1286—1292.[Abstract/Free Full Text]
- Doherty, W. (2000). Family science and family citizenship: Towards a model of community partnership with families. Family Relations, 49, 319—325.[CrossRef]
- Doherty, W.J., & Carroll, J.S. (2002). The families and democracy project. Family Process, 41, 579—589.[CrossRef][Medline]
[Order article via Infotrieve]
- Doherty, W., & Mendenhall, T. (in press). Citizen Health Care: A model for engaging patients, families, and communities as co-producers of health. Families, Systems & Health.
- Future of Family Medicine Project. (2004). The future of family medicine: A collaborative project of the family medicine community. Annals of Family Medicine, 2, S3—S32.[Abstract/Free Full Text]
- Gage, H., Hampson, S., Skinner, T., Hart, J., Storey, L., Foxcroft, D., Kimber, A., Cradock, S., & McEvilly, E. (2004). Educational and psychosocial programmes for adolescents with diabetes: Approaches, outcomes and cost-effectiveness. Patient Education and Counseling, 53, 333—346.[CrossRef][Medline]
[Order article via Infotrieve]
- Gilden, J.L., Hendryx, M., Casia, C., & Singh, S.P. (1989). The effectiveness of diabetes education programs for older patients and their spouses. Journal of the American Geriatrics Society, 37, 1023—1030.[Medline]
[Order article via Infotrieve]
- Grey, M., Boland, E., Davidson, M., Li, J., & Tamborlane, W. (2000). Coping skills training for youth on intensive therapy has long-lasting effects on metabolic control and quality of life. Journal of Pediatrics, 137, 107—113.[CrossRef]
- Hagey, R.S. (1997). The use and abuse of participatory action research. Chronic Diseases in Canada, 18, 1—4.
- Hambridge, K. (2000). Action research. Professional Nurse, 15, 598—601.
- Hampshire, A., Blair, M., Crown, N., Avery, A., & Williams, I. (1999). Action research: A useful method of promoting change in primary care. Family Practice, 16, 305—311.[Abstract/Free Full Text]
- Hampson, S., Foxcroft, D., Skinner, T., Kimber, A., Hart, J., Cradock, S., Storey, L., McEvilly, E., & Gage, H. (2004). Behavioral interventions for adolescents with type 1 diabetes: How effective are they? Diabetes Care, 23, 1416—1422.[CrossRef]
- Hayes, P. (1996). Is there a place for action research? Clinical Nursing Research, 5, 3—5.[Medline]
[Order article via Infotrieve]
- International Diabetes Federation. (2005). World Diabetes Day 2005: Diabetes and foot care. Retrieved 8 August 2005 from: http://www.idf.org/home/index.cfm?node=1294.
- Institute of Medicine. (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, DC: Institute of Medicine.
- Kvale, S. (1997). Interviews: An introduction to qualitative research interviewing. Thousand Oaks, CA: Sage.
- Lewin, K. (1946). Action research and minority problems. Journal of Social Issues, 2, 34—46.
- Lindsey, E., & McGuinness, L. (1998). Significant elements of community involvement in participatory action research: Evidence from a community project. Journal of Advanced Nursing, 28, 1106—1114.[CrossRef][Medline]
[Order article via Infotrieve]
- Lucey, D., & Wing, E. (1985). A clinic based educational programme for children with diabetes. Diabetes Medicine, 2, 292—295.
- Marrero, D., Myers, G., Golden, M., West, D., Kershnar, A., & Lau, N. (1982). Adjustment to misfortune: The use of a social support group for adolescent diabetics. Pediatric and Adolescent Endocrinology, 10, 213—218.
- Marrero, D., Vandagriff, J., Kronz, K., Fineberg, N., Golden, M., Gray, D., Orr, D., & Wright, J. (1995). Using telecommunication technology to manage children with diabetes: The computer-linked outpatient clinic (CLOC) study. Diabetes Educator, 21, 313—319.[Free Full Text]
- McKibbin, E., & Castle, P. (1996). Nurses in action: An introduction to action research in nursing. Curationis, 19, 35—39.[Medline]
[Order article via Infotrieve]
- Mendenhall, T., & Doherty, W. (2003). Partners in diabetes: A collaborative, democratic initiative in primary care. Families, Systems & Health, 21, 329—335.
- Mendenhall, T., & Doherty, W. (2005). Action research methods in family therapy. In F. Piercy & D. Sprenkle (Eds.), Research methods in family therapy (2nd ed., pp. 100—117). New York: Guilford Press.
- Mendenhall, T., & Doherty, W. (in press). The ANGELS (A neighbor giving encouragement, love and support): A collaborative project for teens with diabetes. In D. Linville & K. Hertlein (Eds.), Therapist's notebook for family healthcare. Binghamton, NY: Haworth Press.
- Meyer, J. (2000). Using qualitative methods in health related action research. British Medical Journal, 320, 178—181.[Free Full Text]
- Minkler, M., & Wallerstein, N. (Eds.) (2003). Community-based participatory research for health. San Francisco, CA: Jossey-Bass.
- Morrison, B., & Lilford, R. (2001). How can action research apply to health services? Qualitative Health Research, 11, 436—449.[Abstract/Free Full Text]
- National Institute of Diabetes and Digestive and Kidney Diseases. (2004). National diabetes statistics. Retrieved 8 August 2005 from: http://diabetes.niddk.nih.gov/dm/pubs/statistics/#10.
- Nichols, B. (1995). Action research: A method for practitioners. Nursing Connections, 8, 5—11.[Medline]
[Order article via Infotrieve]
- Pichert, G., Snyder, C., Kinzer, C., & Boswell, E. (1994). Problem solving anchored instruction about sick days for adolescents with diabetes. Patient Education & Counseling, 23, 115—124.[CrossRef]
- Pichert, J., Smeltzer, C., Snyder, R., Gregory, R., Smeltzer, & Kinzer, C. (1994). Traditional vs. anchored instruction for diabetes-related nutritional knowledge, skills, and behavior. Diabetes Educator, 20, 45—48.[Free Full Text]
- Razum, O., Gorgen, R., & Diesfeld, H.J. (1997). Action research in health programs. World Health Forum, 18, 54—55.[Medline]
[Order article via Infotrieve]
- Smith, K., Schreiner, B., Brouhard, B., & Travis, L. (1991). Impact of camp experience on choice of coping strategies by adolescents with insulin-dependent diabetes mellitus. The Diabetes Educator, 17, 49—53.[Free Full Text]
- Smith, K., Schreiner, B., Jackson, C., & Travis, L. (1993). Teaching assertive communication skills to adolescents with diabetes: Evaluation of a camp curriculum. Diabetes Educator, 19, 136—141.[Free Full Text]
- Smith, S., Willms, D., & Johnson, N. (Eds.) ( 1997). Nurtured by knowledge: Learning to do participatory action research. New York: The Apex Press.
- Standridge, J.B. (2000). Putting prevention into practice. Clinics in Family Practice, 2, 485—500.[CrossRef]
- Tobin, M. (2000). Developing mental health rehabilitation services in a culturally appropriate context: An action research project involving Arabic-speaking clients. Australian Health Review, 23, 177—184.[Medline]
[Order article via Infotrieve]
- Ward, K., & Trigler, J. (2001). Reflections on participatory action research with people who have developmental disabilities. Mental Retardation, 39, 57—59.[CrossRef][Medline]
[Order article via Infotrieve]
- Wing, R.R., Marcus, M.D., Epstein, L.H., & Jawad, A. (1991). A `family-based' approach to the treatment of obese type 2 diabetic patients. Journal of Consulting and Clinical Psychology, 59, 156—162.[CrossRef][Medline]
[Order article via Infotrieve]
Action Research, Vol. 5, No. 4,
378-406 (2007)
DOI: 10.1177/1476750307083722

CiteULike Complore Connotea Del.icio.us Digg Reddit Technorati Twitter What's this?
|
|